What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
HOW OUR ORGANIZATION
STARTED AND MORE ABOUT
WHAT WE DO
Founded in Connecticut in January 2014, Sofia Sees Hope is a not for profit organization generating awareness and raising funds to support research for diagnosis, treatments, and cures for inherited retinal disease.