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Finding a Cure for Blindness

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in Connecticut in January 2014, Sofia Sees Hope is a non profit organization generating awareness and raising funds to support research for diagnosis, treatments, and cures for LCA and other rare inherited retinal diseases.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital

Let’s Get Social!

2 weeks ago
Attention families living with Leber congenital amaurousis (LCA). We’re launching a newsletter! #LCA #IRD
3 weeks ago
There’s gene therapy - and there’s gene editing. Interesting: #LCA #IRD #genetics