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Finding a Cure for Blindness

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in Connecticut in January 2014, Sofia Sees Hope is a non profit organization generating awareness and raising funds to support research for diagnosis, treatments, and cures for LCA and other rare inherited retinal diseases.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital

Let’s Get Social!

3 days ago
Important update on treatment for RPE65-mediated inherited retinal disease (IRD). #LCA #RPE65
1 week ago
Clinical Trial Authorized in the U.S. for Emerging LCA 10 Therapy #LCA #IRD #hope

Health care may be off the table right this minute but don't think it's dead. Keep up your activism! ... See MoreSee Less

As a part of our Days of Action campaign, join us and share a video with your Senators, urging them to #ProtectPatientsNow! Show Senators what is at stake to the #raredisease community by creating a quick video explaining how the #BCRA will affect you or a loved one. Creating a video is easy! Follow our instructions here and upload your video today!

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