Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital

Let’s Get Social!

2 days ago
Our friend Creed had his first surgery yesterday - we are waiting for an update from his mom Sarah. In the meantime, check out this write up about their story in @Newsweek #LCA #Luxturna #GeneTherapy
5 days ago
We are so grateful to Sarah St Pierre for sharing her and her son's journey with us - we are thinking of everyone at Creed's Cause as they get ready for surgery! #RPE65 #LCA #IRD #Luxturna @spark_tx @fightblindness @ASharedVision SofiaSeesHope photo
1 week ago
Attend 2018 VISIONS conference - a terrific event for #LCA & #IRD families to learn and to connect! We will be in the exhibit hall & are planning a get-together so we can all hang out for a bit. Learn more here: @fightblindness SofiaSeesHope photo