Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Sanofi Genzyme

Let’s Get Social!

At 19, Nicole Kear’s biggest concern was choosing a major—until she got a life-changing diagnosis of #retinitispigmentosa. Her memoir, “Now I See You” is an uplifting story of acceptance. We are thrilled to host Nicole 3/30 for "A Rare Opportunity.” Tix:

As part of our 3/30 event "A Rare Opportunity,” we have incredible champagnes for an exclusive tasting, including Rare Genisis, Piper-Heidsieck, Dom Perignon & Cristal Champagnes! Your taste buds will never be the same. Tickets: SofiaSeesHope photo

We are proud to join with @fightblindness, @curechm, @ARVOinfo, @UsherCoalition, @BlindedVeterans, and National Alliance for Eye and Vision Research to support the proposed 'Eye Bonds' federal legislation.

4 days ago

Sofia Sees Hope

We Don't Want You To Miss This Rare Opportunity! - ... See MoreSee Less

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