Supporting the LCA and rare retinal disease community

A Rare Event

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
Editas
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Dominion
MeiraGTx
Sanofi Genzyme
 

Let’s Get Social!


Our Spring 2019 newsletter is out! You can check it out here - and sign up on our website to receive our quarterly publication!
Read it here: https://t.co/PakD2cmCkf https://t.co/Gtz019JDMi
SofiaSeesHope photo

WAIT, WHAT?? New Kids On The Block Sky Box at Mohegan Sun?? 😍😎 - https://t.co/K4NpwhBm9D https://t.co/Zq21EJLruy SofiaSeesHope photo

We were pleased to be part of @RareDiseases /CT Rare Action Network Advocacy Workshop last Friday in Hartford, CT. @SenBlumenthal stopped by. We asked him to support rare-disease research funding/development & for his continued protection of the #OrphanDrugAct. https://t.co/X4xAXlY3fp SofiaSeesHope photo

Early bird pricing for @MoheganSun Arena skybox tix to see @NKOTB MixTape Tour!!! https://t.co/YhTXafkr0U Buy before May 30 and save $25/ticket.

3 days ago

Sofia Sees Hope

NKOTB.
Sky Box, NKOTB Mixtape Tour at Mohegan Sun Arena Skybox
July 3.
Whose got the right stuff? WE DO.
Buy tickets: www.eventbrite.com/e/nkotb-mixtape-tour-benefitting-sofia-sees-hope-tickets-61342832062?ref=elink
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5 days ago

Sofia Sees Hope

Our Spring 2019 newsletter is out! You can check it out here - and sign up on our website to receive our quarterly publication!
Read it here: bit.ly/SHSAprilNews
... See MoreSee Less

View on Facebook