Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
Editas
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Dominion
MeiraGTx
Sanofi Genzyme
 

Let’s Get Social!


We are excited to be able to connect with the great team at @editasmed today! And also glad the event is indoors! https://t.co/UE6WeRndzi SofiaSeesHope photo

Clinical trials are not for the benefit of participating patients. At the heart of a clinical trial is that researchers do *not* know what’s going to happen. https://t.co/CvCtlwWuRB

Photos from Dinner in the Dark are posted! Tag yourselves in our Facebook album. Thank you Mary-Jo Shultis for your always amazing work! https://t.co/h9PlDFPxG7

1 week ago

Sofia Sees Hope

Our friends at Two Blind Brothers have an interesting proposition this holiday season. ... See MoreSee Less

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