Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
Sharing on behalf of @AGTC_ : Clinical trials in XLRP seeking male participants between the ages of 8-50. Visit their website to learn more about the Scenic studies. https://t.co/BQIrfo4AYO
It's time to start exercising those texting fingers! Bidding in the Dark is back for 2021, and we promise it will be better than ever. Get started now by texting BIDDARK21 to 76278!
https://t.co/PFrQlq6yz5
Love this story about Anastasia Pagonis. #StayInYourLane #Stargardt
#ParaSwimming #Paralympics
https://t.co/F0TSqnw9i0
Living with vision loss, Tami Morehouse and Jack McCormick learned the challenging complexities of advocating for themselves so well, that they both now earn a living helping the general population with an array of social services and human resources.
https://t.co/ZeB0o03JcO
It's time to start exercising those texting fingers! Bidding in the Dark is back for 2021, and we promise it will be better than ever. Get started now by texting BIDDARK21 to 76278! ![]()
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sofiasees.org/event/bidding-in-the-dark/
Bidding in the Dark - Sofia Sees Hope
sofiasees.org
This event includes bidding on items to support Sofia Sees Hope, but we will not provide any visuals, and descriptions will be limited.
Perhaps the only time "stay in your lane" is a compliment! Goooooo Anastasia! ![]()
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www.eyewant2know.com/community-stories/stay-in-your-lane-pagonis/
Stay in your lane, Pagonis - Eye Want 2 Know
www.eyewant2know.com
A young American swimmer with vision loss emerges from deep depression to break world records and fast-track her voyage to the Tokyo 2021 Paralympics. Want to keep up with Anastasia Pagonis? Good luck...