Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
Interview opp for parents of children w/ Retinitis Pigmentosa or Leber congenital amaurosis to review materials currently in development. If you are interested in learning more, please contact Pillar Patient Advocates at 908-509-8900, or email Epilkington @Pillaradvocates.com
We have learned of an interview opportunity for parents of children with Retinitis Pigmentosa or Leber congenital amaurosis to review materials that are currently in development.
The interviews are 60 minutes via phone/computer and participants are compensated $125 for their time and input. All information discussed is kept strictly confidential. If you are interested in learning more, please contact Pillar Patient Advocates at 908-509-8900, or via email Epilkington@Pillaradvocates.com
Audible has launched Audible Stories, a free service that offers educational and entertaining audiobook content for kids, teens, and families.
There are titles for beginning readers and for older readers. There’s also fun educational content like children’s song collections.
These and hundreds of other titles are available free of charge—no catch, nothing to buy. There are titles across six different languages, and it’s set up for kids through teens with easy-to-navigate categories, plus a section of literary classics.
stories.audible.com/start-listen
stories.audible.com
Free stories for kids of all ages. Audible Stories is a free website where kids of all ages can listen to hundreds of Audible audio titles across six different languages—English, Spanish, French, German, Italian and Japanese—for free, so they can keep learning, dreaming and just being kids.