Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
ProQR
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
LM Hospital
Dominion
agtc
MeiraGTx
Janssen
 

Let’s Get Social!


40+ experts in #ophthalmology & #GeneResearch gathered recently to share research & patient perspectives and identify next steps to advance treatments for #LeberCongenitalAmaurosis caused by variation of the #IQCB1 gene.
https://t.co/Wbsow8XbSh @fightblindness

An incredible lineup of webinars for spring and summer on a host of topics important to the rare inherited retinal disease community. Sign up now - they're free. https://t.co/7thTc6mV6L

We have an incredible lineup of webinars for spring and summer! Don’t miss out on all this important information. https://t.co/7thTc6mV6L