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Finding a Cure for Blindness

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital

Let’s Get Social!

5 days ago
SSH co-founder Laura Manfre shares her thoughts on testifying yesterday to @US_FDA AdComm about #RPE65 #GeneTherapy
6 days ago
Here’s the Spark press release on the AdComm 16-0 vote to recommend @US_FDA approval of #RPE65 gene therapy. #LCA
6 days ago
AdComm votes unanimously to recommend @US_FDA approve #RPE65 gene therapy. 16-0. On #WorldSightDay. We're not crying, you're crying.

We are represented at this conference by our development director, Danielle. Stay tuned to our blog for updates and insights. ... See MoreSee Less

We're off to a great start here in Washington, D.C. for day 1 of the 2017 #NORDSummit! We are proud to host 670 passionate individuals who are all committed to improving the lives of people with #rarediseases. Follow and use the hashtag to keep up with and be a part of the conversation!

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