Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital

Let’s Get Social!

1 week ago
Atom Biggs says raising a visually impaired son has been ‘the greatest adventure of my life’ Read more in our Living with LCA series. @CureCRB1 @ASharedVision #LCA #IRD #CRB1
1 week ago
"I consider living with a blind partner a precious exercise of mindfulness.” Brandon Biggs lives with LCA. His wife, who isn’t blind, shared her story with us. @CureCRB1 @ASharedVision #LCA
1 week ago
Brandon Biggs is featured in our “Living with LCA” series — as well as his mom, dad and his wife. Living with LCA includes the whole family! @CureCRB1 @ASharedVision #LCA #IRD #CRB1
2 weeks ago
Congrats to Kristen! She is a wonderful advocate for rare inherited retinal diseases. #LCA #IRD @CureCRB1