Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Sanofi Genzyme

Let’s Get Social!

3 weeks ago
August is #NationalEyeExamMonth - we often hear stories of parents who spend months or years seeking a diagnosis for their child before they learn it is #LCA. Visit our website to learn more: #IRD
3 weeks ago
An inspiring story and some excellent advice from a young woman in Mexico living with LCA. Thank you Angelica for sharing your incredible story!
4 weeks ago
Please join us Oct. 5-6 for our 1st LCA Family Conference. We are committed to connect LCA families to researchers, industry experts & other families who are on a journey to understand & live with LCA. #LCA #IRD
1 month ago
Today is Prime Day! @Amazon donates to Sofia Sees Hope Inc when you shop Prime Day deals at #PrimeDay