Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
Just like there are "early" Black Friday deals, we wanted to give you the first chance to support us on #GivingTuesday! Donate today and beat the rush: https://t.co/PWfeDX0gk3 https://t.co/LlVDtlqkR9
We love, love, love our local merchants and vendors and encourage everyone to shop local this holiday season! But if you do need to hop online for a gift or two, please consider supporting Sofia Sees Hope on @Amazon. https://t.co/uLtQFf1WAo
Pentatonix Christmas is Here! Mohegan Sun Arena - Benefitting Sofia Sees Hope! Sunday, December 9, 2018 7-10 p.m. Thank you @MoheganSun for your support! @PTXofficial https://t.co/jw9s4kJ0QZ
'Tis the Season ... -
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As you make your holiday shopping plans, we hope your list will include visits to the many local businesses that support Sofia Sees Hope throughout the year! We couldn't do what we do without the incredible support of our local sponsors. So thank you as always to:We love, love, love our local merchants and vendors and encourage everyone to shop local this holiday season! But if you do need to hop online for a gift or two, please consider supporting Sofia Sees Hope on Amazon.