Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
ProQR
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
LM Hospital
Dominion
agtc
MeiraGTx
Janssen
 

Let’s Get Social!


The story is that the Irish Coffee was invented by a hotel chef in Shannon, Ireland, as a way to greet weary travelers arriving on seaplanes. Learn how to make the perfect Irish Coffee + 3 other Emerald Isle cocktails at our virtual fundraiser 3/17. https://t.co/5ucCg3gOKs https://t.co/APZciLhBsI SofiaSeesHope photo

It's #RareDisease Day! Thank you to all our supporters and our inherited retinal disease community for staying with us through this last - most interesting - year. We never stopped working to fund gene therapy treatments, and the future looks bright. https://t.co/PWfeDX0gk3

Put on your green March 17 for a session w/ James Beard Award Winning Mixologist Dale DeGroff. Fire up the Zoom to mix these cocktails for your St. Patrick’s Day celebration: Strange Brew, Irish Blond, Dubliner, and of course, the perfect Irish Coffee. https://t.co/2rGP3koSXs

CT marks #RareDiseaseDay Friday. We are one of 35 states *without* a state Rare Disease Advisory Council, which ensures the #RareDisease community a voice in state policy-making. Do better, CT.
https://t.co/ucGiWyZENi @RareDiseases @CT_HDCC @Steinberg06880

23 hours ago

Sofia Sees Hope
The story, according to master mixologist Dale DeGroff, is that the Irish Coffee was invented by a hotel chef in Shannon, Ireland, as a way to greet weary travelers arriving from the United States on seaplanes. Learn how to make the perfect Irish Coffee and three other Emerald Isle cocktails at our St. Patrick's Day "Toast To Treatments" virtual fundraiser on Wednesday evening, March 17. Click here, or link in profile: ow.ly/GjPC50DP4eR ... See MoreSee Less
View on Facebook