Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
Today is Prime Day! @Amazon donates to Sofia Sees Hope Inc when you shop Prime Day deals at https://t.co/SezAhovKFO. #PrimeDay
There's A Lot To Catch Up On with Sofia Sees Hope! Dinner in the Dark, LCA Family Conference, Annual Appeal ... https://t.co/qX0XeUcC1w
We checked in with Creed at the end of his third grade year to see how life was treating him in the wake of his #LUXTURNA treatment for his #LCA-related vision loss. Hint: It’s treating him well. https://t.co/xNdK2RWVeO
Thank you @SanofiGenzyme for your wonderful support of all SSH does to educate and advocate. We are thrilled to welcome you to the family! https://t.co/EwhvblBKgO #LCA #IRD #blindness
Today is Prime Day! Amazon donates to Sofia Sees Hope Inc when you shop Prime Day deals at smile.amazon.com/ch/46-4552134.
We checked in with Creed to see how it's going. And it's going really well.
Creed's Cause
An Amazing Year - Sofia Sees Hope Florida Boy Loves Life After Gene Therapy
sofiasees.org
Creed Pettit is a 9-year-old Florida boy who completed treatment in March with the gene therapy drug LUXTURNA™, the first gene therapy for LCA2 (RPE65).