Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
ProQR
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
LM Hospital
Dominion
agtc
MeiraGTx
Janssen
 

Let’s Get Social!


Sharing on behalf of @AGTC_ : Clinical trials in XLRP seeking male participants between the ages of 8-50. Visit their website to learn more about the Scenic studies. https://t.co/BQIrfo4AYO

It's time to start exercising those texting fingers! Bidding in the Dark is back for 2021, and we promise it will be better than ever. Get started now by texting BIDDARK21 to 76278!
https://t.co/PFrQlq6yz5

Living with vision loss, Tami Morehouse and Jack McCormick learned the challenging complexities of advocating for themselves so well, that they both now earn a living helping the general population with an array of social services and human resources.
https://t.co/ZeB0o03JcO