Supporting the LCA and rare retinal disease community

LCA Family Conference

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
Editas
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Dominion
MeiraGTx
Sanofi Genzyme
 

Let’s Get Social!


Our "Your Voice Matters” panel at our 7/27 LCA Family Conference brings together patient advocates from @spark_tx @AGTC_ @BarthSyndrome and the #sicklecell community. Register: https://t.co/tpqj4ojTMS…/sofiaseeshope2019/925219/ #LCA #IRD

Pioneering LCA patient Tami Morehouse at LCA Family Conference July 27 in Philly for a panel called "All About Clinical Trials” w/ Dr. Wiley Chambers of @US_FDA & Michel Michaelides of @MeiraGTX. https://t.co/lrvsG20yGM

. @fightblindness recently published in @Genes_MDPI on its role in driving genetic research for Inherited Retinal Diseases. Read: https://t.co/Wg4gUmp1f2. We are hosting FFB CEO Ben Yerxa at our LCA Family Conference in Philadelphia, 7/27.Info: https://t.co/lrvsG20yGM

If you are hunting for bargains online today - please choose to support Sofia Sees Hope! Thank you! https://t.co/n6swdBIwod SofiaSeesHope photo