Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
Editas
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Dominion
MeiraGTx
Sanofi Genzyme
 

Let’s Get Social!


"It's the same conversation everywhere I go," Hawkins said. "They say, 'I sat in a cell for 20 years, but when I touched my first dot of Braille, it healed me.’ " https://t.co/xXcMm4Om3R #Braille #rehabilitation #blindness

Thanks to the response to our year-end appeal, we raised an extra $5,000 to provide access to free genetic testing for inherited retinal disease patients. Learn more about testing here: https://t.co/LAgtu9pqS7 #KnowYourGene @fightblindness

Happy New Year! 🎉 Help us close out 2019 on a high note - https://t.co/72xg6dPMqP https://t.co/s1uPBc9Cf0 SofiaSeesHope photo

Just this week, we heard from a family who put their child's genetic testing on hold because of how much they were told it would cost. Every dollar you donate to us thru 12/31 will go toward funding genetic testing. https://t.co/PWfeDX0gk3 #inheritedretinaldisease