Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
Editas
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Dominion
MeiraGTx
Sanofi Genzyme
 

Let’s Get Social!


Translational research focused on #LCA helped bring forth unprecedented numbers of genetic clinical trials now underway for #IRD treatments and cures. Learn more: https://t.co/QLNJV46piU @ChildrensPhila @PennMedicine

Last Chance for Tickets! Dinner in the Dark Sales Close Monday - https://t.co/El91NuYtux https://t.co/sYWOtH1VNM SofiaSeesHope photo

It's World Sight Day, an annual day of awareness to focus global attention on blindness and vision impairment. At Sofia Sees Hope, our motto is, "We see a cure for blindness." Donate: https://t.co/PWfeDX0gk3 #WorldSightDay #blindness

2 days ago

Sofia Sees Hope

Such a fun night! Thanks to all who attended and gave so generously! ... See MoreSee Less

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2 days ago

Sofia Sees Hope

Oh yeah. We went there. #secondcourse #dinnerinthedark #pasta #what? ... See MoreSee Less

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