Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
Another chance to thank Power of Together 2 for their incredible support! Their grant allows us to cover travel costs for #LCA and #IRD families to attend our Conference next month! https://t.co/NTKqTkE5ax
We're ready for our biggest October ever! Are you? - https://t.co/LbhWz3VwGb https://t.co/1mAcpoILKb
Our September newsletter is out! Info from @fightblindness, article on the renaming of #LCA genetic mutations, and more on our Oct. Family Conference in Mystic, CT https://t.co/xniOHwfRd4 #IRD
A Braille tablet - incredible technology advancement for the visually impaired. https://t.co/3MQJueMdiH
Another chance to thank Power of Together 2 for their incredible support of Sofia Sees Hope! This grant will allow us to cover travel costs for LCA and IRD patients and families to attend our Family Conference next month!
Mystic-based group supports nonprofit helping the blind
theday.com
Power of Together 2, a crowdfunding group based in Mystic, named Ledyard nonprofit Sofia Sees Hope as its August beneficiary, awarding theDinner in the Dark emcee and auctioneer extraordinaire Mike O'Farrell has a pro tip for Rick Koster from The Day on how to successfully eat while blindfolded.
Mike’s other piece of advice - start at the top of your plate and just work your way down.
Do you have any secrets to success at Dinner in the Dark? Have you bought your tickets yet? They are going fast: sofiasees.org/get-involved/dinner-in-the-dark/