Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
This is why you need to #KnowYourGene. Good luck to Creed and his mom as they head to Miami to schedule Creed's treatment to reverse his blindness caused by #RPE65 gene!
#RareDiseaseDay https://sofiasees.org/curing-blindness-the-road-to-treatment-with-luxturna/ https://t.co/3vfRh64ZdD
We look forward to attending #RareDiseaseDay in #HartfordCT on 2/28. We agree that patients play a key role in moving research foward! It's why we launched our Rare Disease awareness campaign, #KnowYourGene. Get Tested, Get Connected. https://t.co/Ryt4r1fCQH https://t.co/PoyCyAlKQn