Supporting the LCA and rare retinal disease community

A Rare Event

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Sanofi Genzyme

Let’s Get Social!

. @ProQR Doses First Patient in Phase 2/3 ILLUMINATE Trial of Sepofarsen for LCA10. #LCA #IRD #weseeacure

Another milestone reached by @AGTC_ in gene therapy. It's not for #LCA, but every step forward for one is a step forward for all. #CNGB3trial #raredisease

A few tickets left for the evening.
A couple tickets left for the rare champagne tasting. We'd love to share this Rare Opportunity with you. @bsb_savoy @PinePointSchool