Supporting the LCA and rare retinal disease community

LCA Family Conference

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Sanofi Genzyme

Let’s Get Social!

Tami Morehouse is a wonderful asset to the LCA patient advocacy movement since she underwent treatment during the RPE65 clinical trials. Read: Tami will be at our LCA Family Conference July 27. Learn more about it here:

Don't miss our LCA Family Conference July 26-28 in Philly: Genetic Superstars Up Close & Personal -

We’re excited to share this from Spark. We can’t stress enough the importance of a genetic diagnosis. Our upcoming LCA Family Conference in July will provide important updates on research/treatments tied to specific genes: SofiaSeesHope photo

LCA Family Conference (7/26-28, Philadelphia) panels: "Your Voice Matters!” "One Disease, Many Approaches” "All About Clinical Trials” "Living with an IRD”. Updates on research& treatments. It’s can’t miss!