Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
Dr. Gerald Cox of @editasmed discussing genetic technologies and work in Ushers, and other IRDs. Enrolling LCA 10 patients now for study: https://t.co/QEgciURcLH https://t.co/xz6GHacpu4
With more than 30 trials in pipeline we’re no longer just talking about hope. #VISIONS2018 @fightblindness https://t.co/32D165kWqh
Thank you @verizon Wireless in Groton CT for your amazing support of the local nonprofit community. https://t.co/tyit5RuvoG #Samsung #payitforward @AlwaysHomeInc @SafeFuturesCT
Wow! Just a week to go to the #VISIONS2018 conference in San Diego. Make sure you look for us in the Grand Ballroom (Booth #305)!
https://t.co/7FSV90mAZu @fightblindness
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