Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital

Let’s Get Social!

2 days ago
Dr. Gerald Cox of @editasmed discussing genetic technologies and work in Ushers, and other IRDs. Enrolling LCA 10 patients now for study: SofiaSeesHope photo
2 days ago
With more than 30 trials in pipeline we’re no longer just talking about hope. #VISIONS2018 @fightblindness SofiaSeesHope photo
5 days ago
Thank you @verizon Wireless in Groton CT for your amazing support of the local nonprofit community. #Samsung #payitforward @AlwaysHomeInc @SafeFuturesCT
1 week ago
Wow! Just a week to go to the #VISIONS2018 conference in San Diego. Make sure you look for us in the Grand Ballroom (Booth #305)! @fightblindness

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