Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
It takes a village to host Dinner in the Dark. A critical member of our village is Renewal by Andersen of Southern New England, and its charitable arm, Window of Giving. Their support allows us to fund research into inherited retinal disease. https://t.co/EYYW8RDaNi
Our Fall 2019 newsletter is out! In it, you'll find info about the upcoming Dinner in the Dark, our LCA Family Conference in July, & the latest on the CRISPR/Cas9 Clinical Trial for CEP290 (LCA10).
https://t.co/ius9clXHJD
Check your mailbox, the Dinner in the Dark invites are out! *AND* we’ve confirmed the menu. You are going to love it. https://t.co/EYYW8RDaNi https://t.co/6PfGd0B8Gx
Dinner in the Dark live auction: PARK CITY, UTAH IN SNOW OR SUN (OR BOTH!)
Seven nights for up to seven guests
Park City lies east of Salt Lake City in Utah. Framed by the craggy Wasatch Range, it’s bordered by the Deer Valley Resort and the huge Park City Mountain Resort, both renowned for incredible skiing.
Stay in Park City Parks Edge, a new luxury three-bedroom, three-bath condo that sleeps up to seven guests! This 1,671-square-foot property features a top-floor large master bedroom suite with a king bed, a large private bathroom with stone shower, soaking tub, and dual vanities. It offers great mountain views and private decks overlooking the mountains and surrounding open space.
Across the road is the community clubhouse with pool table, full kitchen for entertaining, a large outdoor hot tub, a community pool, a well-equipped workout room. It’s an easy drive to ski, hike, mountain bike, or stroll the historic downtown for shopping and dining!
Check out the rest of the live auction: sofiasees.org/get-involved/dinner-in-the-dark/live-auction/
We put the "alive" in live auction! Don't miss Dinner in the Dark 2019 - mailchi.mp/ec83a09bd389/we-put-the-alive-in-live-auction
We put the "alive" in live auction!
The zebra is the international symbol of rare disease. Why? Medical students are told to look first for the most common diagnosis. In the 1940s, Dr. Theodore Woodward, a professor at the University of Maryland School of Medicine, told his students, “When you hear hoof beats, think of horses, not z...