Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

 
Editas
Mystic Aquarium
Spark
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital
Dominion
MeiraGTx
Sanofi Genzyme
 

Let’s Get Social!


The #Martini has a long and storied history in American culture. Join us 8/22 as we explore indepth the history of this dry delight with master mixologist Dale DeGroff & mix a few classics. Proceeds benefit LCA research and #genetictesting. https://t.co/CSgfZ6uzSd

SSH ambassador Jack McCormick reflected on how his life was changed by the #coronavirus. "As someone with a visual impairment I get assistance when I do my groceries – something I didn’t feel comfortable doing given the pandemic.” https://t.co/7GbUt9sC9H

Please join us on 8.22 for "A Toast To Treatments: A Fundraiser to Benefit LCA and Rare IRD Treatments & Community” featuring Dale DeGroff, the King of Cocktails! Learn the martini’s fascinating history and mix a classic or 2 along with Dale.
https://t.co/CSgfZ6uzSd

1 day ago

Sofia Sees Hope

“I never go jogging, it makes me spill my martini.” ~ George Burns

No running required for our upcoming virtual fundraiser on Aug. 22! From the comfort of your own home, hear the fascinating history of the martini from master mixologist Dale DeGroff, and learn to mix some incredible cocktails right along with him!

Thanks to Hendrick's Gin for providing bartending expertise for us - after you register you will receive an ingredient list!

It doesn't get better than this: sofiasees.org/event/a-toast-to-treatments/
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3 days ago

Sofia Sees Hope

“A man must defend his home, his wife, his children, and his martini.” ~ Jackie Gleason

Join us Aug. 22 for the definitive martini event, "A Toast To Treatments: The Evolution of the Martini" with master mixologist, Dale DeGroff (AKA the King of Cocktails.)

In addition to the fascinating backstory of this most American of cocktails, mix your own at home along with Dale and Erik Andersson, Hendrick's Gin ambassador. On registration, you'll receive the list of needed ingredients!

sofiasees.org/event/a-toast-to-treatments/
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