Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital

Let’s Get Social!

1 hour ago
Thank you @ChelseaGroton for your support for our quarterly newsletter! Next issue is out in April. SofiaSeesHope photo
2 days ago
This is why you need to #KnowYourGene. Good luck to Creed and his mom as they head to Miami to schedule Creed's treatment to reverse his blindness caused by #RPE65 gene!
SofiaSeesHope photo
1 week ago
We look forward to attending #RareDiseaseDay in #HartfordCT on 2/28. We agree that patients play a key role in moving research foward! It's why we launched our Rare Disease awareness campaign, #KnowYourGene. Get Tested, Get Connected. SofiaSeesHope photo

Sofia Sees Hope shared National Organization for Rare Disorders, Inc. (NORD)'s post. ... See MoreSee Less

We are thrilled to once again be working with The Hole in the Wall Gang Camp to offer the third #RareDisease Summer Family Camp in Connecticut, May 31-June 3. During this weekend, Camp will open its doors to children and families impacted by rare diseases and ensure that the families experience the transformational spirit and friendships that go hand-in-hand with camp. Learn more about the opportunity and how to apply here:

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