Supporting the LCA and rare retinal disease community

We see a cure for blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank You to These Organizations

for their Ongoing Commitment to Sofia Sees Hope.

Mystic Aquarium
Simply Majestic
Mohegan Sun
Eye Care Expressions
LM Hospital

Let’s Get Social!

8 hours ago
Part of our mission at SSH is to make connections in the research world for rare inherited retinal diseases. We were pleased to speak recently to @NightstaR_x #IRD #LCA
1 day ago
Our latest "Living with LCA" family story - 4-year-old Vicky is living life to the fullest, while her parents are committed to finding a cure for LCA-RDH12. #LCA #IRD #RDH12 @RDH12Sight SofiaSeesHope photo
2 weeks ago
We are thrilled to welcome Beth, Shanda and Stephanie to our Board. #LCA #Lebercongenitalamaurosis #IRD

This is Enzo. He is 3 years old, and he is living with LCA. Learn more about him, and lots of other families in the LCA community, on our blog:

(Pictured: Little Enzo wearing his bright red glasses being held by his mother Laura. They are laughing.)
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