Supporting the LCA and rare retinal disease community
We see a cure for blindness.
What is Leber Congenital Amaurosis (LCA)?
LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.
What We Do
Founded in 2014, Sofia Sees Hope is a nonprofit 501(c)3 patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.
Thank You to These Organizations
for their Ongoing Commitment to Sofia Sees Hope.
Let’s Get Social!
The latest in our "Living with #LCA" series: Mikayla Larson. “There are a lot of parents that are terrified for their kids to live this life. And while it’s not ideal, it doesn’t mean that they aren’t capable of living a fulfilled life like they should.” https://t.co/0WjmjmST5M
This is HUGE news for the #LCA community: @EditasMed Announces @US_FDA Acceptance of IND Application for EDIT-101, set to be the first in vivo #CRISPR medicine administered to people anywhere in the world, https://t.co/CS6wDQrwPx
Help us reach our goal for 2018 - mailchi.mp/3b99831ccdf7/help-us-reach-our-goal-for-2018