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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Family Connections
    • Community
      • Community News
      • Resources
      • Rare Retinal Disease Glossary
    • Events
      • Party for Sight
      • Dinner in the Dark
      • Photo Gallery
    • Contact
      • Get in Touch
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    Archives

    Monthly Archive for: "March, 2018"
    0
    By Sofia Sees Hope
    In News
    Posted March 29, 2018

    Sofia Sees Hope Spring Newsletter 2018

    Click here to download the newsletter.

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    0
    By Rosanne Smyle
    In Blog
    Posted March 28, 2018

    Post-Surgery: Beginning to See the Light

    This is the fourth in a series following the progress of Creed Pettit, a 9-year-old Florida third-grader, who completed treatment in March with the breakthrough gene-therapy drug called [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted March 25, 2018

    After Luxturna™ Treatment: ‘Mom, Pop, is that you sitting there?’

    Christian Guardino underwent experimental eye surgery five years ago with a revolutionary genetic treatment called LUXTURNA™, forever changing his life by restoring his vision that was lost due [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted March 19, 2018

    Living Without LCA: ‘Andddddd we’re off”

    “Andddddd we’re off 💓,” Sarah St. Pierre Pettit wrote Saturday afternoon as she, her son, Creed, and her fiancée, Chad, piled into their SUV. They’re headed south for Miami’s Bascom […]

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    0
    By Rosanne Smyle
    In Blog
    Posted March 12, 2018

    Misty Lovelace: ‘I Can See Little Things’

    Told at age 12 she would be blind by 18 because of her Leber congenital amaurosis, Misty Lovelace of Kentucky participated in the gene therapy trials for LUXTURNA, to treat […]

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    0
    By Rosanne Smyle
    In Blog
    Posted March 6, 2018

    Ready, Set, Scheduled. Florida Boy Will Receive Gene Therapy Treatment to Reverse Vision Loss

    This is the second in a series following the progress of Creed Pettit, a 9-year-old Florida third-grader, who completed treatment in March with the breakthrough gene-therapy drug called [...]

    READ MORE
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