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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
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    • Community
      • Community News
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    • Events
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    Archives

    Monthly Archive for: "April, 2018"
    0
    By Eissa Bass
    In News
    Posted April 25, 2018

    SSH Supports RARE Act 2018

    Sofia Sees Hope has joined with dozens of other organizations representing the 30 million men, women, and children living in the United States with rare disease, to support the Rare Disease […]

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    0
    By Rosanne Smyle
    In Blog
    Posted April 20, 2018

    Life After LUXTURNA: ‘Now He Can See’

    This is the sixth in a series following the progress of Creed Pettit, a 9-year-old Florida third-grader, who completed treatment in March with the breakthrough gene-therapy drug called LUXTURNA™, [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted April 13, 2018

    New Patient Services Program Helps People Navigate Their Road To A Cure

    Now that LUXTURNA™ has come to market as a revolutionary vision-restoring genetic treatment, how does it get to patients? The answer to that question and many others can be found within […]

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    0
    By Sofia Sees Hope
    In Blog
    Posted April 9, 2018

    College Connection: Making A Successful Transition To College

    By Jack McCormick Starting high school or going off to college is not easy; new people, classes and sometimes even a new city makes for a stressful transition. Doing it […]

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    0
    By Eissa Bass
    In News
    Posted April 9, 2018

    Sofia Sees Hope Receives Grant from Community Foundation for Greater New Haven

    Ledyard, CT (April 9, 2018) — The Community Foundation for Greater New Haven recently awarded Sofia Sees Hope a $5,000 grant to help SSH create long-term financial planning and revenue […]

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    0
    By Rosanne Smyle
    In Blog
    Posted April 7, 2018

    His Future’s So Bright, He’s Gotta Wear Shades

    This is the fifth in a series following the progress of Creed Pettit, a 9-year-old Florida third-grader, who completed treatment in March with the breakthrough gene-therapy drug called LUXTURNA™, [...]

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    0
    By Eissa Bass
    In News
    Posted April 6, 2018

    SSH Opposes States’ Efforts to Limit Access to LUXTURNA™

    In the wake of the December 2017 approval by the U.S. Food and Drug Administration of voretigene neparvovec (LUXTURNA™) to treat vision loss in patients with biallelic RPE65 mutation associated [...]

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