• About
    • Our Story
    • Our Vision/Mission
    • Our Team
    • Pressroom
  • For Families
    • What is LCA?
    • ID Your Gene
    • Clinical Trials
    • Resources
    • Rare Retinal Disease Glossary
    • Family Connections
  • Stories
    • Posts & Videos
    • Photo Gallery
  • Get Involved
    • Dinner in the Dark
    • LCA Family Conference
    • Event Calendar
    • Donate
  • Contact
    • Get in Touch
    • Newsletter Sign Up
    • Family Connections
  • DONATE
    Leber Congenital Amaurosis Leber Congenital Amaurosis Leber Congenital Amaurosis Leber Congenital Amaurosis
    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Pressroom
    • For Families
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Resources
      • Rare Retinal Disease Glossary
      • Family Connections
    • Stories
      • Posts & Videos
      • Photo Gallery
    • Get Involved
      • Dinner in the Dark
      • LCA Family Conference
      • Event Calendar
      • Donate
    • Contact
      • Get in Touch
      • Newsletter Sign Up
      • Family Connections
    • DONATE

    Archives

    Monthly Archive for: "October, 2018"
    By Rosanne Smyle
    In Blog
    Posted October 31, 2018

    The Road to Treatment: Understanding How Therapies Are Developed

    Successful clinical drug trials are a cornerstone of U.S. Food and Drug Administration approval, such as with LUXTURNA™, a ground-breaking genetic therapy that helps restore vision in Leber [...]

    READ MORE
    By Rosanne Smyle
    In Blog
    Posted October 29, 2018

    IRD Milestones: Reasons to Be Excited

    1971 – Just those numbers in white on a black page appeared on the big screen. That’s how Brian Mansfield, PhD., began his presentation to families and patients living with Leber congenital [...]

    READ MORE
    By Eissa Bass
    In Blog
    Posted October 9, 2018

    2018 LCA Family Conference Presentations

    On October 5-6, 2018, Sofia Sees Hope held its first Family Conference for LCA and IRD families and caregivers. Thank you to all who attended and thank you to our sponsors, who made it all [...]

    READ MORE
    By Rosanne Smyle
    In Blog
    Posted October 1, 2018

    LCA Family Conference: The Role of the Patient Voice

    Sofia Sees Hope is holding its first LCA Family Conference on Saturday in Groton, CT. This event is the culmination of our first five years of work and fulfills our mission to connect LCA [...]

    READ MORE
    By Rosanne Smyle
    In Blog
    Posted October 1, 2018

    LCA Family Conference: The Road To Treatment

    Sofia Sees Hope is holding its first LCA Family Conference on Saturday in Groton, CT. This event is the culmination of our first five years of work and fulfills our mission to connect LCA [...]

    READ MORE
    Sign Up for Our Newsletter
    NEWSLETTER SIGN UP
    Get In Touch
    • 860.556.3119
    • info@sofiaseeshope.org
    Follow Us
    Sofia Sees Hope is a 501(C)(3). © All rights reserved.
    Please read our Privacy Promise.