January 2019 - Sofia Sees Hope

Posted January 31, 2019

Sofia Sees Hope Gives $100K For Research and Genetic Testing for Inherited Retinal Disease Patients

A $100,000 donation from Sofia Sees Hope will support research into restoring vision for patients diagnosed with Leber congenital amaurosis (LCA). The grant will also provide access to genetic [...]

The Role of the Patient Voice in Rare Disease Advocacy

It’s you. It’s all about you. The journey from identifying a rare disease, to conducting studies, to approving a treatment, is long – but it always starts with the patient, and the information [...]

After Treatment with LUXTURNA, It’s a New Year, New Vision

Two little girls – one on the East Coast and one on the West Coast – ring in this New Year with something they’ve never had before – their vision. Eight-year-old Hannah Reif of Maple Glen, PA, [...]