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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Pressroom
    • For Families
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Resources
      • Rare Retinal Disease Glossary
      • Family Connections
      • Sofia Sees Hope Ambassadors
      • Let’s Chat About…
    • Stories
      • Posts & Videos
      • Photo Gallery
    • Get Involved
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      • LCA Family Conference
      • Event Calendar
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    Archives

    Monthly Archive for: "February, 2019"
    0
    By Eissa Bass
    In News
    Posted February 28, 2019

    Sofia Sees Hope Supports Proposed ‘Eye Bonds’ Federal Legislation

    Sofia Sees Hope supports The Faster Treatments and Cures for Eye Diseases Act, H.R. 6421. We join Foundation Fighting Blindness (FFB), the Association for Research in Vision and Ophthalmology, [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted February 26, 2019

    Connecticut Rare Disease Day February 28

    Members of Connecticut’s General Assembly (CGA) will hear from myriad people and organizations, including Sofia Sees Hope, about patient advocacy and access to treatment during a legislative [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted February 7, 2019

    Living with LCA: ‘Know It’s Not Something You’re Going to Conquer in One Day’

    The best of both worlds – that’s how Ashlyn Lincoln describes life with her two sons: 4-year-old Gunner, who was born without vision, and 7-year-old Ace, who is sighted. “Both Ace and Gunner [...]

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