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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Pressroom
    • For Families
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Resources
      • Rare Retinal Disease Glossary
      • Family Connections
      • Sofia Sees Hope Ambassadors
    • Stories
      • Posts & Videos
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    • Get Involved
      • Dinner in the Dark
      • LCA Family Conference
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    Archives

    Monthly Archive for: "July, 2020"
    0
    By Sofia Sees Hope
    In Blog
    Posted July 23, 2020

    Life in the Time of Coronavirus

    By Jack McCormick I first heard about coronavirus on my way back from a weekend of skiing in mid-January. It seemed to be the only thing the radio station we were listening to was talking about. [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted July 20, 2020

    Nearly Three Years Later, LUXTURNA®™ Treatments Continue to See Success

    Since its launch in March 2018, breakthrough gene therapy LUXTURNA®™ continues to be successful in helping improve vision in people with inherited retinal disease due to mutations in both copies [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted July 15, 2020

    Clinical Trials and Emerging Research Show Promise for LCA Treatments

    Forty clinical trials and a lot of pre-clinical research into LCA treatments show promising pathways to discovering the next LUXTURNA®, according to Shannon Boye, PhD, the opening speaker for the [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted July 8, 2020

    Register Now for LCA-CRX Webinar Set for July 15

    Drew’s Beacon for Blindness and Foundation Fighting Blindness are hosting a webinar Wednesday, July 15, at 4:30 p.m. EST on current research involving LCA-CRX, an extremely rare form of Leber [...]

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