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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
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      • Community News
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    Archives

    Monthly Archive for: "January, 2021"
     ProQR Completes Enrollment for Next Phase of RNA Therapy for LCA10-CEP290
    0
    By Rosanne Smyle
    In Blog
    Posted January 29, 2021

    ProQR Completes Enrollment for Next Phase of RNA Therapy for LCA10-CEP290

    ProQR Therapeutics reached an important milestone by completing enrollment in the next pivotal phase of clinical trials of sepofarsen, a developing RNA therapy for treating LCA10, a form of Leber [...]

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     Sofia Sees Hope Launches Web Series To Educate, Connect Rare Retinal Disease Community
    0
    By Eissa Bass
    In News
    Posted January 19, 2021

    Sofia Sees Hope Launches Web Series To Educate, Connect Rare Retinal Disease Community

    Sofia Sees Hope, a nonprofit patient advocacy organization dedicated to working with those affected by blindness caused by rare inherited retinal disease (IRD), is launching a monthly web series [...]

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     Sofia Sees Hope Donates $72K+ For Genetic Testing and Research into Inherited Retinal Disease Treatments
    0
    By Eissa Bass
    In News
    Posted January 13, 2021

    Sofia Sees Hope Donates $72K+ For Genetic Testing and Research into Inherited Retinal Disease Treatments

    Ledyard, CT (January 13, 2021) — Sofia Sees Hope will donate $72,000 to support research into treatments for inherited retinal diseases (IRDs), including Leber congenital amaurosis (LCA), and to [...]

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     Sofia Sees Hope Launches Book Club for Middle Schoolers with Visual Impairments
    0
    By Eissa Bass
    In News
    Posted January 4, 2021

    Sofia Sees Hope Launches Book Club for Middle Schoolers with Visual Impairments

    Sofia Sees Hope is launching a Book Club for middle school-aged kids with visual impairments. It will be moderated by Sofia Priebe, a high school senior in Connecticut for which […]

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