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Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu [...]

Join Sofia Sees Hope for its third LCA Family Conference in Cleveland providing information and networking for the Leber congenital amaurosis community! Lots more details to come. untieduntied

Join Sofia Sees Hope at VISIONS 2020, the national conference of the Foundation Fighting Blindness, a one-of-a-kind event in which individuals who are visually impaired, and their families, have [...]

WE HOPE TO RESCHEDULE IN THE FALL. Sofia Sees Hope presents “A Rare Opportunity: Kody Keplinger,” New York Times bestselling author who lives with Leber congenital amaurosis. Kody [...]

Welcome to the Sofia Sees Hope Social Distancing Scavenger Hunt! We are glad to meet you. If you are on this page it means you are interested in joining in on our scavenger hunt, an idea [...]

Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event on Rare Disease Day to discuss the challenges rare [...]

By Damiana Harper I was born in 1976 in Spokane, Washington. By the time I was born, my parents’ relationship was basically over, so I was raised by a single mom. It was clear from a very young [...]

Sofia Sees Hope donated more than $100,000 at the end of 2019 to support research into treatments for inherited retinal diseases (IRDs), including Leber congenital amaurosis (LCA), and to provide [...]

  When our daughter Sofia was 2, we knew something was wrong with her vision. By the time she was 5, doctors told us she perhaps had Leber congenital amaurosis, and the prognosis was grim: [...]

This year at the sixth Dinner in the Dark on Saturday, October 19, at the Mystic Marriott Hotel & Spa, guests are being encouraged to “show their stripes!” Recognizing that the international [...]