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A Pentatonix Christmas Tour at Mohegan Sun Arena Skybox!

On October 5-6, 2018, Sofia Sees Hope held its first Family Conference for LCA and IRD families and caregivers. Thank you to all who attended and thank you to our sponsors, who made it all [...]

Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu [...]

Come join us for a day of learning and connecting with our LCA (Leber congenital amaurosis) community. We kick off on Friday night with a welcome dinner reception, and on Saturday we’ll [...]

Dinner in the Dark‘s live auction is like no other! With charming master auctioneer Mike O’Farrell to guide you, our committee has gathered amazing experiences, travel, and more! Get [...]

Ledyard, CT (Sept. 5, 2018) — Power of Together 2, a local crowd-funding group, raised $10,200 from 102 members to benefit Sofia Sees Hope in August. The money will be used to help families from [...]

Sofia Sees Hope, a nonprofit dedicated to assisting those with Leber congenital amaurosis (LCA) and other rare inherited retinal diseases (IRDs), has received a $22,000 grant from Sanofi Genzyme, [...]

VISIONS, the national conference of the Foundation Fighting Blindness, is the only event of its kind—created solely for individuals and families who are affected by retinal diseases. Find access [...]

Ledyard, CT (June 19, 2018) — When local Wireless Zone franchisees Scott Gladstone and Neil Ryan decided to donate seven Samsung Galaxy 8” tablets to Sofia Sees Hope (SSH) to help the nonprofit [...]

RARE on the Road brings critical education and insights to rare disease patients, advocates and caregivers, while collaborating in an interactive, engaging environment. Topics include the [...]