Archives

  When our daughter Sofia was 2, we knew something was wrong with her vision. By the time she was 5, doctors told us she perhaps had Leber congenital amaurosis, and the prognosis was grim: [...]

Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu [...]

This year at the sixth Dinner in the Dark on Saturday, October 19, at the Mystic Marriott Hotel & Spa, guests are being encouraged to “show their stripes!” Recognizing that the international [...]

Join Sofia Sees Hope for its 2nd LCA Family Conference in Philadelphia. In multiple sessions, hear the latest in research, treatments, education, and advocacy in the Leber congenital amaurosis [...]

NKOTB Mixtape Tour at Mohegan Sun Arena Skybox Wednesday, July 3, 2019 7:00 p.m. Buy Your Tickets! New Kids On The Block launched their biggest tour in years in May, and Sofia Sees Hope has [...]

Ledyard, CT (June 11, 2019) — Laura Manfre of Ledyard, CT, a co-founder of Sofia Sees Hope, has been named a National Trustee by the Foundation Fighting Blindness. Sofia Sees Hope is a 501(c)(3) [...]

(May 22, 2019) — Sofia Sees Hope received two grants in May from southeastern Connecticut organizations that will be used to help cover travel expenses for families to attend its second LCA [...]

  Please join us for an evening to raise awareness of rare inherited retinal disease. Join us to learn about vision lost and vision gained and issues facing those with rare disease. [...]

Sofia Sees Hope supports The Faster Treatments and Cures for Eye Diseases Act, H.R. 6421. We join Foundation Fighting Blindness (FFB), the Association for Research in Vision and Ophthalmology, [...]

A $100,000 donation from Sofia Sees Hope will support research into restoring vision for patients diagnosed with Leber congenital amaurosis (LCA). The grant will also provide access to genetic [...]