• About
    • Our Story
    • Our Vision/Mission
    • Our Team
    • Pressroom
  • For Families
    • What is LCA?
    • ID Your Gene
    • Clinical Trials
    • Resources
    • Rare Retinal Disease Glossary
    • Family Connections
    • Sofia Sees Hope Ambassadors
    • Let’s Chat About…
  • Stories
    • Posts & Videos
    • Photo Gallery
  • Get Involved
    • Dinner in the Dark
    • Event Calendar
    • Donate
  • Contact
    • Get in Touch
    • Newsletter Sign Up
    • Family Connections
  • DONATE
    Leber Congenital Amaurosis Leber Congenital Amaurosis Leber Congenital Amaurosis Leber Congenital Amaurosis
    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Pressroom
    • For Families
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Resources
      • Rare Retinal Disease Glossary
      • Family Connections
      • Sofia Sees Hope Ambassadors
      • Let’s Chat About…
    • Stories
      • Posts & Videos
      • Photo Gallery
    • Get Involved
      • Dinner in the Dark
      • Event Calendar
      • Donate
    • Contact
      • Get in Touch
      • Newsletter Sign Up
      • Family Connections
    • DONATE

    Archives

    Author Archive for: "Elissa Bass"
     Let’s Chat About … ProQR’s work in treatments for inherited retinal disease
    0
    By Eissa Bass
    In
    Posted July 13, 2021

    Let’s Chat About … ProQR’s work in treatments for inherited retinal disease

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those [...]

    READ MORE
    0
    By Eissa Bass
    In
    Posted June 16, 2021

    Let’s Chat About … The Importance of Self Advocacy

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those [...]

    READ MORE
     Let’s Chat About … My Retina Tracker
    0
    By Eissa Bass
    In
    Posted May 13, 2021

    Let’s Chat About … My Retina Tracker

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those [...]

    READ MORE
     Let’s Chat About … natural history and patient outcome studies
    0
    By Eissa Bass
    In
    Posted April 19, 2021

    Let’s Chat About … natural history and patient outcome studies

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those [...]

    READ MORE
     A Toast to Treatments: St. Patrick’s Day Edition
    0
    By Eissa Bass
    In
    Posted March 17, 2021

    A Toast to Treatments: St. Patrick’s Day Edition

    Put on your green and join us for a unique blend of history and mixology, with James Beard Award Winner Mixologist Dale DeGroff, (AKA the King of Cocktails)! Fire up the Zoom and enjoy a live [...]

    READ MORE
    0
    By Eissa Bass
    In
    Posted March 15, 2021

    Let’s Chat About … Genetic Testing

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those [...]

    READ MORE
    0
    By Eissa Bass
    In
    Posted February 19, 2021

    LCA Research Update: CRB1-associated retinal disease

    We invite you to attend the research update for CRB1-associated retinal disease (also known as LCA 8). Speakers are Amy Laster, Phd, Foundation Fighting Blindness; Todd Durham, PhD, Foundation [...]

    READ MORE
    0
    By Eissa Bass
    In
    Posted February 18, 2021

    LCA Research Update: IQCB1/NPHP5-associated retinal dystrophy

    We invite you to attend the research update for IQCB1/NPHP5-associated retinal disease (also known LCA 17). Speakers are Amy Laster, Phd, Foundation Fighting Blindness; Todd Durham, PhD, [...]

    READ MORE
    0
    By Eissa Bass
    In
    Posted February 16, 2021

    Let’s Chat About: FDA Review of Rare Retinal Disease Treatments

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those [...]

    READ MORE
    0
    By Eissa Bass
    In
    Posted February 8, 2021

    Sofia Sees Hope Book Club: Read “Lila and Hadley”

    Welcome to the inaugural Sofia Sees Hope Book Club! This club is especially made for middle school-age kids who are visually impaired. It will be moderated by Sofia Priebe, a high school senior [...]

    READ MORE
    1 2 3 4 5 6
    page 1 of 6
    Sign Up for Our Newsletter
    NEWSLETTER SIGN UP
    Get In Touch
    • 860.556.3119
    • info@sofiaseeshope.org
    Follow Us
    Sofia Sees Hope is a 501(C)(3). © All rights reserved.
    Please read our Privacy Promise.