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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
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    • Community
      • Community News
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    Archives

    Author Archive for: "Elissa Bass"
    0
    By Eissa Bass
    In
    Posted November 5, 2021

    Let’s Chat About … Gene Therapy for LCA

    Join us as we chat with Michel Michaelides, (BSc MB BS MD(Res) FRCOphth FACS) a Founding Member of MeiraGTx and Professor of Ophthalmology, UCL Institute of Ophthalmology in Dept. of […]

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     A Rebrand for Sofia Sees Hope: New Name, Same Mission
    0
    By Eissa Bass
    In News
    Posted October 18, 2021

    A Rebrand for Sofia Sees Hope: New Name, Same Mission

    Ledyard, CT (October 19, 2021) — Sofia Sees Hope, a nonprofit that has been raising research funding and awareness around Leber congenital amaurosis (LCA) and other rare inherited retinal [...]

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     Let’s Chat About … CRISPR and gene editing technology
    0
    By Eissa Bass
    In
    Posted August 9, 2021

    Let’s Chat About … CRISPR and gene editing technology

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with […]

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     Let’s Chat About … the importance of the patient voice in rare disease
    0
    By Eissa Bass
    In
    Posted July 21, 2021

    Let’s Chat About … the importance of the patient voice in rare disease

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with […]

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     Scavenger Hunt 2021
    0
    By Eissa Bass
    In
    Posted May 6, 2021

    Scavenger Hunt 2021

    Welcome to the Sofia Sees Hope Scavenger Hunt! We launched it last year because of the coronavirus crisis, when in-person fundraising went dark and we were unable to be with our family […]

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     Sofia Sees Hope Scavenger Hunt
    0
    By Eissa Bass
    In Blog
    Posted April 29, 2021

    Sofia Sees Hope Scavenger Hunt

    Welcome to the Sofia Sees Hope Scavenger Hunt! We are glad to meet you. We are doing this to continue to raise awareness for rare inherited retinal disease and Leber […]

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    0
    By Eissa Bass
    In
    Posted April 8, 2021

    Let’s Chat About … The Importance of Self Advocacy

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with […]

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     A Toast to Treatments: St. Patrick’s Day Edition
    0
    By Eissa Bass
    In
    Posted February 27, 2021

    A Toast to Treatments: St. Patrick’s Day Edition

    Put on your green and join us for a unique blend of history and mixology, with James Beard Award Winner Mixologist Dale DeGroff, (AKA the King of Cocktails)! Fire up […]

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     Let’s Chat About … My Retina Tracker
    0
    By Eissa Bass
    In
    Posted February 17, 2021

    Let’s Chat About … My Retina Tracker

    Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with […]

    READ MORE
    0
    By Eissa Bass
    In
    Posted February 4, 2021

    LCA Research Update: CRB1-associated retinal disease

    We invite you to attend the research update for CRB1-associated retinal disease (also known as LCA 8). Speakers are Amy Laster, Phd, Foundation Fighting Blindness; Todd Durham, PhD, Foundation [...]

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