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May 2021

Scavenger Hunt 2021

May 21 - May 31
$100

Welcome to the Sofia Sees Hope Scavenger Hunt! We launched it last year because of the coronavirus crisis, when in-person fundraising went dark and we were unable to be with our family and friends in person. It was so fun that we are bringing it back this year, even as COVID restrictions are being lifted in many places. Your (suggested minimum) donation of $100/team to enter will benefit Sofia Sees Hope, and the education, outreach and advocacy work we are engaged in.…

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June 2021

Let’s Chat About … The Importance of Self Advocacy

June 16 @ 7:00 pm - 8:00 pm
Free

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Today we chat with Tami…

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July 2021

Let’s Chat About … ProQR’s work in treatments for inherited retinal disease

July 13 @ 1:00 pm - 2:00 pm

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Daniel de Boer, Founder and…

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