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May 2021
Scavenger Hunt 2021
$100
Welcome to the Sofia Sees Hope Scavenger Hunt! We launched it last year because of the coronavirus crisis, when in-person fundraising went dark and we were unable to be with our family and friends in person. It was so fun that we are bringing it back this year, even as COVID restrictions are being lifted in many places. Your (suggested minimum) donation of $100/team to enter will benefit Sofia Sees Hope, and the education, outreach and advocacy work we are engaged in.…
Find out more »June 2021
Let’s Chat About … The Importance of Self Advocacy
Free
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Today we chat with Tami…
Find out more »July 2021
Let’s Chat About … ProQR’s work in treatments for inherited retinal disease
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Daniel de Boer, Founder and…
Find out more »