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March 2021

Let’s Chat About … Genetic Testing

March 15 @ 1:00 pm - 2:00 pm
Free

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Emily Place, Licensed Genetic Counselor…

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A Toast to Treatments: St. Patrick’s Day Edition

March 17 @ 7:00 pm - 8:00 pm

Put on your green and join us for a unique blend of history and mixology, with James Beard Award Winner Mixologist Dale DeGroff, (AKA the King of Cocktails)! Fire up the Zoom and enjoy a live presentation that includes a history of the Irish Coffee, along with tips, tricks and the stories behind these Irish-themed cocktails for your St. Patrick's Day celebration: a Strange Brew (for the beer lovers), an Irish Blond, a Dubliner, and of course, the perfect Irish…

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April 2021

Let’s Chat About … natural history and patient outcome studies

April 19 @ 1:00 pm - 2:00 pm

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Jonathan Stokes, Director, Patient-Centered Outcomes…

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May 2021

Let’s Chat About … My Retina Tracker

May 13 @ 1:00 pm - 2:00 pm

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Todd A. Durham, MS,…

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July 2021

Let’s Chat About … ProQR’s work in treatments for inherited retinal disease

July 13 @ 1:00 pm - 2:00 pm

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Daniel de Boer, Founder and…

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November 2021

Dinner in the Dark 2021

November 13 @ 5:30 pm - 10:30 pm
Mystic Marriott Hotel and Spa, 625 N Rd
Groton, Southeastern Connecticut 06340 United States
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Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu secret. Visit our Dinner in the Dark main page for more information >> 5:30pm: Cocktail Reception 7:00pm: Multi-course Gourmet Dinner, Wine Pairing, Live Auction & Dancing  

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