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February 2020

NORD Connecticut Rare Action Network Rare Disease Day 2020

February 28 @ 8:00 am - 10:30 am
Connecticut State Legislative Office Building, 300 Capitol Avenue
Hartford, CT United States
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Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event on Rare Disease Day to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Connecticut.

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June 2020

Visions 2020

June 18 - June 20
Hyatt Regency Minneapolis, 1300 Nicollet Mall
Minneapolis, MN 55403 United States
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Join Sofia Sees Hope at VISIONS 2020, the national conference of the Foundation Fighting Blindness, a one-of-a-kind event in which individuals who are visually impaired, and their families, have the opportunity to hear about exciting advancements in blindness research. All attendees can gain practical skills for thriving with vision loss, learn about products and services that can improve their lives, and connect with others from across the country. The program is designed specifically for individuals and families who are affected by…

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October 2020

Dinner in the Dark 2020

October 10 @ 5:30 pm - 10:30 pm
Mystic Marriott Hotel and Spa, 625 N Rd
Groton, Southeastern Connecticut 06340 United States
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Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu secret. Visit our Dinner in the Dark main page for more information >> 5:30pm: Cocktail Reception 7:00pm: Multi-course Gourmet Dinner, Wine Pairing, Live Auction & Dancing  

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July 2021

LCA Family Conference 2021

July 8, 2021 - July 12, 2021
InterContinental Cleveland, 9801 Carnegie Avenue
Cleveland, OH 44106 United States
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Join Sofia Sees Hope for its third LCA Family Conference in Cleveland providing information and networking for the Leber congenital amaurosis community! Lots more details to come. untieduntied

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