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February 2020
NORD Connecticut Rare Action Network Rare Disease Day 2020
Please join patients, families, caregivers, medical professionals, industry representatives and state legislators at this important event on Rare Disease Day to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Connecticut.
Find out more »June 2020
Visions 2020
Join Sofia Sees Hope at VISIONS 2020, the national conference of the Foundation Fighting Blindness, a one-of-a-kind event in which individuals who are visually impaired, and their families, have the opportunity to hear about exciting advancements in blindness research. All attendees can gain practical skills for thriving with vision loss, learn about products and services that can improve their lives, and connect with others from across the country. The program is designed specifically for individuals and families who are affected by…
Find out more »October 2020
Dinner in the Dark 2020
Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu secret. Visit our Dinner in the Dark main page for more information >> 5:30pm: Cocktail Reception 7:00pm: Multi-course Gourmet Dinner, Wine Pairing, Live Auction & Dancing
Find out more »July 2021
LCA Family Conference 2021
Join Sofia Sees Hope for its third LCA Family Conference in Cleveland providing information and networking for the Leber congenital amaurosis community! Lots more details to come. untieduntied
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