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September 2021

Let’s Chat About … the importance of the patient voice in rare disease

September 29 @ 1:00 pm - 2:00 pm
Free

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Jill Dolgin, PharmD, Head…

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November 2021

Let’s Chat About … ProQR’s work in treatments for inherited retinal disease

November 9 @ 1:00 pm - 2:00 pm

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Daniel de Boer, Founder and…

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