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March 2021
Let’s Chat About … Genetic Testing
Free
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Emily Place, Licensed Genetic Counselor…
Find out more »A Toast to Treatments: St. Patrick’s Day Edition
Put on your green and join us for a unique blend of history and mixology, with James Beard Award Winner Mixologist Dale DeGroff, (AKA the King of Cocktails)! Fire up the Zoom and enjoy a live presentation that includes a history of the Irish Coffee, along with tips, tricks and the stories behind these Irish-themed cocktails for your St. Patrick's Day celebration: a Strange Brew (for the beer lovers), an Irish Blond, a Dubliner, and of course, the perfect Irish…
Find out more »April 2021
Let’s Chat About … natural history and patient outcome studies
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Jonathan Stokes, Director, Patient-Centered Outcomes…
Find out more »May 2021
Let’s Chat About … My Retina Tracker
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Todd A. Durham, MS,…
Find out more »July 2021
Let’s Chat About … ProQR’s work in treatments for inherited retinal disease
Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Daniel de Boer, Founder and…
Find out more »November 2021
Dinner in the Dark 2021
Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu secret. Visit our Dinner in the Dark main page for more information >> 5:30pm: Cocktail Reception 7:00pm: Multi-course Gourmet Dinner, Wine Pairing, Live Auction & Dancing
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