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March 2019

A Rare Opportunity

March 30 @ 6:00 pm - 8:30 pm
Lake of Isles, 1 Clubhouse Dr
North Stonington, CT 06359 United States
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  Please join us for an evening to raise awareness of rare inherited retinal disease. Join us to learn about vision lost and vision gained and issues facing those with rare disease. Featuring: Nicole Kear, bestselling author of the memoir “Now I See You,” about her diagnosis with retinitis pigmentosa. Christian Guardino, Howie Mandel's 2017 Golden Buzzer winner on America’s Got Talent, diagnosed with Leber congenital amaurosis, who received gene therapy to reverse vision loss. Sofia Priebe, sophomore at Ledyard…

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July 2019

LCA Family Conference 2019

July 26 - July 28
Warwick Rittenhouse Square, 220 S 17TH ST
PHILADELPHIA, PA 19103 United States
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Join Sofia Sees Hope for its 2nd Annual LCA Family Conference in the city where researchers developed LUXTURNA, the ground-breaking genetic therapy that helps restore vision to LCA patients with the RPE65 gene mutation. In multiple sessions, hear the latest in research, treatments, education, and advocacy in the Leber congenital amaurosis and inherited rare disease communities. Families living with LCA or IRDs connect in a convivial atmosphere of shared stories and mutual support.   Our Generous Sponsors     Conference…

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October 2019

Dinner in the Dark

October 19 @ 5:30 pm - 10:30 pm
Mystic Marriott Hotel and Spa, 625 N Rd
Groton, Southeastern Connecticut 06340 United States
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Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu secret. Visit our Dinner in the Dark main page for more information >> 5:30pm: Cocktail Reception 7:00pm: Multi-course Gourmet Dinner, Wine Pairing, Live Auction & Dancing

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