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LCA Family Conference 2018

October 5 - October 6

Come join us for a day of learning and connecting with our LCA (Leber congenital amaurosis) community. We kick off on Friday night with a welcome dinner reception, and on Saturday we’ll hear from experts how treatments go to market, we’ll explore ways you can support and accelerate research, and you’ll have time to discuss living with LCA with other individuals and families.

Please join this very special event and meet other LCA families, and those who work to keep treatments for rare disease moving forward.

Bring the Kids! Our generous sponsor, Mystic Aquarium, is preparing a special day for your kids at the Aquarium. Just a 10 minute ride from the conference – transportation, lunch and activities are included in the fee so you can focus on the conference sessions.

REGISTER NOW

 

CONFERENCE OVERVIEW

Friday Night Reception

6-8 p.m. Welcome Dinner for LCA Families

Saturday Program

7:30-9 a.m. Breakfast

8:30 a.m. Mystic Aquarium pick up from hotel for kids

9 a.m. to 2:30 p.m. – Conference sessions (detailed agenda coming soon)

2:30-3 p.m. Kids return from Mystic Aquarium

Saturday Evening – Dinner in the Dark

A detailed agenda will be published to our website shortly.

REGISTER NOW


JOIN US FOR DINNER IN THE DARK ON SATURDAY

Discounted tickets for LCA Conference attendees – use code LCACONF*

5:30-7 p.m. Cocktail Reception

7-11 p.m. Gourmet Dinner with Pairing Wines, Live Auction and Dancing

Dinner in the Dark is a culinary experience recommended for adults, although older children who are adventurous eaters have also enjoyed this event. If you need a babysitter, please contact the hotel where you are staying or you can also send us an email at info@sofiaseeshope.org.

The discount code is valid only for those also attending the LCA Family conference. It enables you to purchase tickets at cost, which is $100 / person. (Regular price is $150 / person.) For financial assistance, please contact us.

HOTEL ACCOMMODATIONS

Reserve a Room at the Mystic Marriott Hotel & Spa, in Groton, CT.

Sofia Sees Hope has a reserved block that you can access with the link above or by calling them directly. (Contact info is listed on that page.) This hotel typically sells out for this weekend, so please book early. Our block rate is $209 / night.

FAQs

How can I contact the organizer with any questions?

Send any questions to: info@sofiaseeshope.org or call 860-556-3119. (Please be patient, we have no full time staff!)

What’s the refund policy?

Full refund with a seven day advance notice.

Is there any financial assistance available?

Yes, we do have limited funding set aside for those traveling from other parts of North America who would like to attend, but may need financial assistance. Please contact us by email.

How many people will be attending the conference?

This is our first year, we have no full time staff and are mostly volunteer run so we are capping the number of attendees to 60. Registration to LCA individuals and families will be available on a first come, first served basis, so don’t wait to register! We look forward to meeting you and with your feedback and input, perhaps we can plan a much bigger conference next year!

REGISTER NOW

THANKS TO OUR GENEROUS SPONSORS!

Mystic Aquarium logo

Details

Start:
October 5
End:
October 6

Venue

Mystic Marriott Hotel and Spa
625 N Rd
Groton, Southeastern Connecticut 06340 United States
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