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January 2021

Sofia Sees Hope Book Club: Read “Lila and Hadley”

January 25 @ 4:00 pm - 5:00 pm

Welcome to the inaugural Sofia Sees Hope Book Club! This club is especially made for middle school-age kids who are visually impaired. It will be moderated by Sofia Priebe, a high school senior in Connecticut who has vision loss due to Leber congenital amaurosis (LCA). The Book Club will meet weekly on Zoom beginning Monday, January 18, and last for four weeks. Each hour-long meeting will begin at 4 p.m., EST. Upon registration, you will receive a link to join…

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Webinar: Let’s Chat About … the Latest in LCA Therapy Research

January 27 @ 1:00 pm - 2:00 pm

Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We've developed the series with those living with LCA and IRDs in mind, but we invite all members of our community, including those in research, industry, and the regulatory communities to join any of the sessions, as we look ahead to a common goal of advancing treatments for rare retinal disease. Ben Shaberman, Senior Director,…

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November 2021

Dinner in the Dark 2021

November 13 @ 5:30 pm - 10:30 pm
Mystic Marriott Hotel and Spa, 625 N Rd
Groton, Southeastern Connecticut 06340 United States
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Our primary fundraiser for the year, this event is also a true culinary adventure! You will enjoy a multi-course gourmet dinner with paired wines while wearing a blindfold, and we keep the menu secret. Visit our Dinner in the Dark main page for more information >> 5:30pm: Cocktail Reception 7:00pm: Multi-course Gourmet Dinner, Wine Pairing, Live Auction & Dancing  

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