Register Now for LCA-CRX Webinar Set for July 15

 In Blog

Drew’s Beacon for Blindness and Foundation Fighting Blindness are hosting a webinar Wednesday, July 15, at 4:30 p.m. EST on current research involving LCA-CRX, an extremely rare form of Leber congenital amaurosis (LCA) caused by a mutation in the CRX gene.

Drew’s Beacon for Blindness was founded by the parents of Drew Picinich, a now 4-year-old preschooler who was diagnosed in 2016 with LCA-CRX, also called LCA7.

The more than 25 identified forms of LCA usually occur in 1 to 2 per 100,000 births. The exceedingly rare CRX affects 1 to 2 percent of all LCA patients.

To attend the informational webinar, please send your email contact information to Drew’s mom, Monica Picinich, at mpicinich@drewsbeacon.org. A follow-up email with the Zoom access link will be sent to you.

Interested parties also can contact Monica by email with any questions or concerns.