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    • About
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    Archives

    Tag Archives for: "LCA"
    0
    By Ben Shaberman
    In News
    Posted November 14, 2024

    LCA5 Gene Therapy Provides Vision Improvements in Clinical Trial

    Nothing is more hopeful or gratifying for the retinal disease community than an emerging or FDA-approved therapy that provides vision to people with advanced retinal disease. Such is the case [...]

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    0
    By Katherine Kraines
    In Blog
    Posted November 14, 2024

    Through the Eyes of Love: Just James!

    Caitlin and Greg Smith eagerly looked forward to the birth of their fourth child, who would complete their busy family of two girls and a boy. Caitlin’s pregnancy was unremarkable, […]

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    0
    By Eve Orcutt
    In Blog
    Posted November 13, 2024

    Celebrating 10 Years: Dinner in the Dark 2024

    This year’s Dinner in the Dark at Foxwoods was a tremendous success, raising over $225,000 and welcoming 330 attendees. Because of the immense support of everyone who joined us for […]

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    0
    By Eve Orcutt
    In News
    Posted November 6, 2024

    HIF Announces Location for the LCA Conference 2025

    We are pleased to announce that the 2025 LCA Family Conference will be hosted at the Embassy Suites in Minneapolis, Minnesota, from Friday, June 20 to Saturday, June 21, 2025. […]

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    0
    By Eissa Bass
    In News
    Posted January 31, 2019

    Sofia Sees Hope Gives $100K For Research and Genetic Testing for Inherited Retinal Disease Patients

    A $100,000 donation from Sofia Sees Hope will support research into restoring vision for patients diagnosed with Leber congenital amaurosis (LCA). The grant will also provide access to genetic [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted December 13, 2018

    Living with LCA: ‘It does no good to have pity’

    Mikayla Larson, a 30-year-old mother living with a rare inherited retinal disease (IRD) called Leber congenital amaurosis (LCA) wants to reassure children living with the same disease that [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted October 31, 2018

    The Road to Treatment: Understanding How Therapies Are Developed

    Successful clinical drug trials are a cornerstone of U.S. Food and Drug Administration approval, such as with LUXTURNA™, a ground-breaking genetic therapy that helps restore vision in Leber [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted September 5, 2018

    ‘As A Doctor, You Will Never Forget’

    Transforming laboratory research into real-life therapy for patients is a rare occurrence. But when it does happen, it’s big. Huge, in fact. Ask Dr. Audina M. Berrocal, the pediatric retinal […]

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    0
    By Rosanne Smyle
    In Blog
    Posted August 22, 2018

    In LCA: Naming Versus Numbering

    Gene mutations in the rare inherited retinal disease of Leber congenital amaurosis commonly are referred to by their gene name, such as GUCY2D, RPE65 and CEP290. But sometimes, as LCA patients [...]

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    0
    By Sofia Sees Hope
    In Blog
    Posted July 17, 2018

    Tell Us Your Story: ‘Do Not Limit Yourself’

    By Angélica Bretón Morán I am 22 years old and I have LCA. My name is Angélica Bretón Morán, I am from Mexico, I am 22 years old and I […]

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